How to Help

Volunteer

Thank you for your interest in volunteering to help the Cystinosis Research Foundation. The generosity and support from our community of family and friends has made a significant difference in the course of cystinosis research, but much remains to be done.
Volunteer to Help Cystinosis Research Foundation »

Donate Online

Interested in making a donation online? Our site is secure and 100% of your donation goes toward cystinosis research.
Donate to the Cystinosis Research Foundation »

Support CRF for Free While You Search and Shop Online

More than 1,300 top stores like Amazon, Toys R Us, Best Buy, Apple, Gap and more will donate a percentage of online sales to CRF when you use GoodShop.  Just go to www.GoodShop.com, designate us as the cause you support and then click over to your favorite store. You pay nothing extra, and you can even save money as GoodShop lists thousands of money-saving coupons and free shipping offers. You can do the same with web browsing by using www.GoodSearch.com as a search engine.

Organize a Fundraising Event

Organizing a fundraising event is a great way to support the Cystinosis Research Foundation in your community. Fundraising events help educate the community about the critical need for funding rare disease research. CRF can provide resources and assistance to make your event successful.
Cystinosis Research Foundation fundraising resources »

Patient Volunteers

Cystinosis research has expanded tremendously in recent years.  There have been new research developments and significant advancements in the treatment of cystinosis. In addition, a group of leading researchers in stem cell and gene therapies, molecular biology and clinical pathophysiology have formed the CRF Gene Therapy Consortium, with the goal to advance progress on the most promising current findings, including moving novel therapeutic modalities into human patients as quickly as possible.  But we need your help.  Participate as a patient volunteer »

Joshua's Journey of Hope Cookbook

Joshua Clarke's grandmother Marianne has created a cookbook with 400 recipes from 80 grandmothers.  All the recipes are family favorites, handed down for generations, including ethnic specialties from Hungary, Cuba, England, Romania, Russia, Italy, Mexico and Poland.  "Favorites From Grandmother's Table" is available for purchase with a suggested $20 donation plus $3 for shipping.  You can order by emailing Marianne at cookbook@joshuasjourney.org or sending a donation to: