CRF Natalie's Wish Events

Recent Events

Fore a Cure Golf Tournament - Monday, November 14, 2011 -  "We hosted 148 golfers, 47 sponsors and underwriters, at an elegant private golf course and clubhouse facilities and we had perfect weather.  We raised more than $215,000 for cystinosis research, who could ask for more? " said tournament chairman Vince Ciavarella.   We are grateful to our Silver Sponsors, Ben's Asphalt and SARES•REGIS Group along with Bronze Sponsors, Bank of the West, CBRE, Commerical Roof Management, Howard Roofing, Lee & Associates, Nelson Paving & Sealing, Oltmans Construction, RBA Builders, TLG Paving and Tucker Electric, many who have supported the last three prior events. Watch for event photos on our Facebook page and mark your calendars for Monday, November 5, 2012 and plan on participating next year!

 
Crash and Crush for a Cure!
What a night - thank you to all who support cystinosis research. We are grateful to Ben's Asphalt for choosing us as their charity. Watch the CRF "Natalie's Wish" car try to survive the derby! http://www.youtube.com/watch?v=WQfTs56_UaI

Visit our Facebook page to view images and videos of the conference and the Natalie's Wish celebration.
2011 Day of Hope - Cystinosis Research Foundation Family Conference
The Day of Hope Family Conference held May 19 - May 21 at the Balboa Bay Club in Newport Beach, California, was both inspirational and informative for families and friends of the cystinosis community from around the world.   Leading cystinosis researchers and scientists provided updates for studies involving the eyes, kidneys, muscles and brain.  Special reports were provided on the RP-103 progress by Raptor Pharmaceuticals, Corp., and Sigma-Tau Pharmaceuticals, shared information on the eyedrops and the FDA approval progress.     Cystinosis families from Brazil, Sweden, Canada and the United States joined together to celebrate a weekend of hope and inspiration.  Plan to join us next year, SAVE THE DATE April 19 - April 21, 2012.

May 1, 2010 - Newport Beach, CA - Day of Hope for Cystinosis Families and Friends

April 30, 2010 – Newport Beach, CA - Ninth Annual Natalie’s Wish Fundraising Event

October 5, 2009 - 3rd Annual Fore A Cure Golf Tournament - Coto de Caza Golf & Raquet Club
May 8, 2009 – Newport Beach, CA - Eighth Annual Natalie’s Wish Fundraising Event
November 21, 2008 – Newport Beach, CA - Jay Strongwater at Neiman Marcus - Champagne Reception
November 18, 2008 – Costa Mesa, CA - St. John Fashion Show at South Coast Plaza
November 10, 2008 – Coto de Caza, CA - 2nd Annual Fore A Cure Golf Tournament

Research

April 8-9, 2010 – Second CRF International Cystinosis Research Symposium for Scientists & Researchers

November 1, 2009 – Autumn Research and Fellowship Grant Proposals Due
September 15, 2009 – Announce Autumn Call for Research Proposals

Archive

September 18, 2008 – Newport Beach, CA – Traditional Jewelers & Riviera Magazine Watch Event
July 25, 2008 – Costa Mesa, CA – David Yurman South Coast Plaza Fragrance Event
May 30, 2008 – Newport Beach, CA - Seventh Annual Natalie’s Wish Fundraising Event
April 3rd & 4th 2008 – Irvine, CA – The First CRF International Cystinosis Research Symposium
October 1, 2007 – First Annual Fore A Cure
June 1, 2007 – Sixth Annual Natalie’s Wish
May 1, 2007 – BOMA Orange County Charity Golf Tournament
November 9, 2006 – Diamond and Jewelry Extravaganza at Traditional Jewelers